NEW LIFE IN THE NEW YEAR
The New York Islanders Hockey Club and the New York Dragons Arena Football Team will be teaming up with the Hampton Bays Mothers' Association in a benefit to be held for Patrick Kelly, a five-year-old Long Island native. The event will be held on Sunday, January 14th, from 6pm to midnight at the Buckley's Inn Between in the Hampton Bays.
Patrick was born on May 4th, 2001 at South Hampton Hospital but was immediately transported to Stony Brook Hospitals' NICU after doctors discovered he was born extremely low-toned and could not so much as blink or even cry. He was only capable of breathing. Patrick's family was told he most likely would not survive and if he did he would be severely retarded, blind and deaf. After several tests were conducted and came back with no diagnosis, Patrick was discharged after 17 days with Å“Low Muscle ToneÂ?.
At 17 months old, Patrick got pneumonia and fought through two collapsed lungs during his 93-day stay at Stony Brook Hospitals' PICU. He underwent surgery to receive a tracheotomy and feeding tube, and he needed full-time support of a respirator. He has since been diagnosed with a rare genetic disorder in the family of Dystrophies called Myotubular Myopathy X-Linked.
Now, at five years old, Patrick is doing well and is four feet tall, weighing 55 pounds. He is still trached, tube fed and is in a wheel chair full-time. This past September, Patrick started Kindergarten at home and has proved the doctors wrong. He is not deaf, blind or mentally challenged but rather is intelligent and scored above average in most areas when tested.
The Kelly family's wish is for Patrick to be able to experience life like other children his age by being able to easily leave the house and see the outside world. In order to do so, the Family will be holding a Å“Chinese/Silent AuctionÂ? and benefit on Sunday, January 14th, 2007 hopes of raising enough money to enable them to purchase a van with multiple customized accessories that suit Patrick's needs. The auction will run from 6pm-8pm. The benefit will run from 8pm- Midnight.
The Islanders and Dragons have donated numerous items to help the family raise money such as autographed jersey's, sticks, pucks, footballs, season tickets, suites for a night and much more. Bruno Gervais and Mike Dunham of the New York Islanders will be present along with Dragons head coach Weylan Harding and WR/LB Chris Anthony. Mike Milbury will also be present with an announcement to make during the course of the night and Dragons radio announcer Wayne Morris will be announcing for the event. If you cannot attend, you can bid on these items now at www.HBMothersassociation.org